Welcome to the discussion about FOG

[Clare Proctor]

Hi there, on the Asymmetric Motor slide it says worse FOG is when off and there is less freezing with DT and 180 turn when on. But then it says freezing is most likely when initiating gait, turning 540 and walking through doorways when on. Afraid I’ve got a bit confused at when medication is helpful or not. Thanks

[Clare Proctor]

Apologies I now have another question! Is is there a description of the Box Shuffle Test anywhere please, other than the diagram in the slides? I am unable to find anything online. Many thanks

[Ailien Rhijnsburger]

I had the same question. Can you please show a little video on the box test? I couldn’t find it.

[Melissa McConaghy]

hi Clare, yes medication is effective for Asymmetric Motor and sensory-attentive, less so for affective/anxious group. The different groups are triggered by different components of the testing and this changes when ON or OFF. The article attached Ehgoetz Martens goes in to more detail here.

Regarding the box shuffle, I can’t show you a video as we are in lockdown currently but here is a description from one of the original authors of the test. Courtney Walton and colleagues Cognitive training for freezing of gait in Parkinson’s disease: a randomized controlled trial | npj Parkinson’s Disease (nature.com)

• This reply was modified 5 years ago by  Melissa McConaghy.

[Tanya Thompson]

Hi,

You referred to a falls and freezing of gait diary. Do you have a good link to a resource that you use effectively to give to your patients? Do you have a movement chart that you would recommend using in an inpatient setting for advocating with neurologists around medication changes that you would be happy to share please?

[Melissa McConaghy]

hi Tanya, this is a simple one that we use to collect information in gym.

Falls-and-Freezing-Diary.pdf 46 KB PDF - Click to view

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[Ailien Rhijnsburger]

Going through your video slowly. Just to let you know that I cannot hear any of the sounds in any of the videos. So when you are letting us hear the beat of the metronome, I cannot hear anything.

Also, you mention you have yet to meet a Parkinson’s client who has FOG who is not very deconditioned. I have two pretty fit men in my group who have FOG. We do focus on cardio and strength training as well as PD warrior to make sure they are fit.

[Melissa McConaghy]

Good to know Ailien. It is true that people can be fit and a freezer but it is more unusual. Hope the module helps to improve outcomes? Noted on the audio. I did mute the audio on the videos but not intentionally on the metronome. Will have to fix that. Ta

[Sarah Hopkins]

Hi, are there a copy of the slides for this talk?

[maria fawcus]

Hello, do you have a link for the characteristics of FOG questionnaire?

Also, patients managed with the apo pump where fluctuations happen more in the initial stages after connecting pump and t’out the day, how have you found managing FoG in this category of patients? What is your experience with devices like gait Q?

[Jo Plimmer]

Hi, I’ve just done the test, but am a little confused about the question that asks which test best distinguishes between the 3 subtypes and the answer is box shuffle. I’d understood from the slides and video that the box shuffle was the most provocative for any of the subtypes and so completing it would help you to trigger FOG but not distinguish between the subtypes, so I don’t understand why the answer is the box shuffle test to the question about which best distinguishes between the 3 – are you able to explain please?

Also, the Capecci et al study isn’t in the resources but there were quite specific questions regarding it. Would you be able to share it too, please?